{"id":267,"date":"2009-10-01T22:14:13","date_gmt":"2009-10-02T02:14:13","guid":{"rendered":"http:\/\/www.aaronwood.us\/?p=267"},"modified":"2009-10-01T22:14:13","modified_gmt":"2009-10-02T02:14:13","slug":"exhausted-and-in-bed-by-600-pm","status":"publish","type":"post","link":"http:\/\/www.aaronwood.us\/?p=267","title":{"rendered":"Exhausted and in bed by 6:00 PM"},"content":{"rendered":"<p>Wow, I don&#8217;t think we have ever had a day at Magee that went by as quickly as today.\u00a0 Sam and I got there a little late this morning due to the lovely Philadelphia traffic, so we only caught the last half of his first PT session.\u00a0 Lucky for us, though, we did get to observe his driving skills yet again, as he terrorized the employees and patients of Magee, in the power wheelchair.\u00a0 All kidding aside, there was much improvement since his last driving experience.\u00a0 There were no circles today.\u00a0 Honestly, I was a little disappointed, I really get a kick out of hearing his devilish laugh when he does it!\u00a0\u00a0\u00a0 After PT, we went to view a video and get information on portable showers and wheelchairs used specifically in showers.\u00a0 Amazing how far technology has come and even more amazing is the cost of that technology!\u00a0\u00a0 After that we went back to his room and he did the trach collar for about 20 minutes unti lunch came.\u00a0 He was just beginning to eat when he had to move to a conference room where we (Aaron, Sam and I) met with Aaron&#8217;s doctor and some other key players in Aaron&#8217;s rehab.\u00a0 We conferenced in Aaron&#8217;s dad and step-mom, as well as Jaime, over the phone.\u00a0\u00a0 When that was over, we went back to Aaron&#8217;s room and again he started to eat his lunch, and a doctor came in the room to talk to him.\u00a0 Two minutes later, while the doctor was still there,\u00a0a Physical Therapist showed up to take him to PT.\u00a0\u00a0 Rather than fight over Aaron, the PT time was changed, the doctor stayed, Sam and I left to eat lunch and poor Aaron STILL didn&#8217;t have his lunch.\u00a0 Finally, at 3:00, the doctor left, the Physical\u00a0Therapist came\u00a0back to his room \u00a0to get him and I INSISTED the poor guy eat his lunch before he does one more thing!!!\u00a0 So, he quickly gulped down a somewhat cool Sloppy Joe and then he was off to PT.\u00a0 He got to play pinball for the second time today.\u00a0 He activates the flippers with controls placed behind his shoulders.\u00a0 He really does well and enjoys that.\u00a0\u00a0\u00a0<\/p>\n<p>After we returned to his room, he decided he wanted to do the trach collar again.\u00a0 He was hooked up, ready to go, but he just didn&#8217;t feel well doing it.\u00a0 He was able to last 20 minutes, but it didn&#8217;t go nearly as well as it had the day before.\u00a0 He asked to stop, which was fine, not a problem.\u00a0\u00a0 After the trach collar is removed, Aaron often gets more secretions than normal \u00a0and his trach has to be suctioned, not a big deal.\u00a0 Today, however, there was some secretion that the Respiratory Therapist couldn&#8217;t get to move up or down with normal suctioning.\u00a0 He used a &#8220;bag&#8221; on Aaron, which forced air down Aaron&#8217;s trach.\u00a0 Eventually, the secretions moved and Aaron felt much better.\u00a0 This kind of activity, though, really wears him out.\u00a0\u00a0 He asked to be put into bed and that&#8217;s exactly what happened.\u00a0 So when we left Magee today at 6:00, Aaron was being put into his bed, extremely worn out.\u00a0<\/p>\n<p>Forgive me for all the details.\u00a0 I just want\u00a0you to understand what a typical day is like for Aaron and for you to understand\u00a0how days like this can really wear\u00a0him out.\u00a0<\/p>\n<p>\u00a0Tomorrow&#8217;s another day, Aaron.\u00a0 We&#8217;ll continue to work on gaining time on that trach collar!<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Wow, I don&#8217;t think we have ever had a day at Magee that went by as quickly as today.\u00a0 Sam and I got there a little late this morning due to the lovely Philadelphia traffic, so we only caught the last half of his first PT session.\u00a0 Lucky for us, though, we did get to [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"_links":{"self":[{"href":"http:\/\/www.aaronwood.us\/index.php?rest_route=\/wp\/v2\/posts\/267"}],"collection":[{"href":"http:\/\/www.aaronwood.us\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.aaronwood.us\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.aaronwood.us\/index.php?rest_route=\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"http:\/\/www.aaronwood.us\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=267"}],"version-history":[{"count":10,"href":"http:\/\/www.aaronwood.us\/index.php?rest_route=\/wp\/v2\/posts\/267\/revisions"}],"predecessor-version":[{"id":277,"href":"http:\/\/www.aaronwood.us\/index.php?rest_route=\/wp\/v2\/posts\/267\/revisions\/277"}],"wp:attachment":[{"href":"http:\/\/www.aaronwood.us\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=267"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.aaronwood.us\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=267"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.aaronwood.us\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=267"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}