One year in

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It has been exactly one year since I moved from the comfort of my own home to where I currently am, a nursing home.  I realize I am better off here regarding care (aides/nurses) because at home it could be so unpredictable. Here I am always covered with no worries.  If one of my usual people calls off, there’s always someone that can fill in.  That is something I could not promise my mom while living at home. 

I was uneasy about coming but I figured with the help of my support system I would get through.  That was taken away less than two months due to the facility going on lockdown because of Covid.  I have been unable to see my family and friends since March 2020.  Doctors’ appointments are something I look forward to because I get to leave temporarily and see the world. 

Thankfully, I was matched up with some very special aides who have made this experience bearable, something I would have never thought possible.  They make me smile and laugh daily, regardless of my less than positive and happy attitude at times.  They have become way more than just ‘’help’’.  They are my friends.  People I appreciate and enjoy seeing.  Without them, I think I would’ve lost my mind a long time ago.  I could never fully explain just how much they mean to me.

I received my first vaccine shot Friday.  It’s been two days and I feel fine.  My arm isn’t even that sore but then again what do I know, I’m a quadriplegic 😊  My hopes are this is the first step of getting things under control and hopefully seeing the facility open back up sooner than later.

  I thought going through paralysis was the hardest thing I would ever have to do.  Overcome having a feeding tube, not being able to breathe, learning how to breathe all over again and having a trach which eventually I had removed.  Relearning life basically.  All things I was told would probably never happen.  As bad as that stuff sounds, I had my family and friends by my side.  Never take yours for granite.  Appreciate what you have and everything that’s been given to you because you never know when it could be taken away. 

January Week 1 & 2 Playlists

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If you don’t know, I try to make a playlist of new music that I find every week. Here are the first two for the new year…



https://music.amazon.com/user-playlists/dfdef44188b1450eb94732bffc14285esune?ref=dm_sh_b3e2-630e-fd43-f639-27183



https://music.amazon.com/user-playlists/3400edb4526d4041a11b97b5bedf5c49sune?ref=dm_sh_a05c-617c-6bf0-0840-5120c