Author Archives : Aaron


Not Even a Week

Well, we have not officially lived in our home for even a week and we are needing to make a major upgrade/replacement. A few seconds before the heat would kick on, I would small gas. Not good. Yesterday I finally figured something was up and Melissa called UGI to have someone come. Apparently this was a much bigger deal than I thought because she said someone would be here within 30 minutes. Much to my surprise, they actually were.

The gentleman from UGI indicated that whatever machine he was using was detecting carbon monoxide and basically the house was unsafe. He shut off the gas to the furnace and then turned the furnace off as well. Fortunately we are still able to use the gas to cook, keep our water warm, etc. We needed to have someone else come take a look at whatever was happening with our furnace, which we did, and they indicated the issue could not be fixed and the entire unit needed to be replaced. We freaked out. Thank god we purchased a home warranty which will cover a huge amount of the cost.

We are however, living without a main way to heat our home. Thank god family has come through yet again. Cousin Nate let us borrow a few space heaters which worked wonderfully last night and today. Melissa did hear from the home warranty company and the new furnace has been approved and hopefully will be installed between this coming Monday and Wednesday. We are keeping our fingers crossed for as early as possible.

So that’s our latest excitement. That and I started experiencing excruciating pain in my neck again. Hopefully this will pass. Also, my baclofen procedure has been rescheduled for this coming Monday so we are definitely looking forward to that.

I hope everyone as well!


Trial? Failure!

So my morning got started at 4:00 AM today to get ready for my baclofen trial. We were to be at the hospital by 6:30 AM but we were running behind and got their closer to 7:00 AM. Really no big deal there.

I get checked in, taken upstairs to where everything is going to go down, get transferred into a bed from my wheelchair and got changed. Then they started trying to insert an IV. Wow. Total failure. I think they tried four times. I think they were trying for probably the fifth time when the Dr. showed up and told us he was unable to do the procedure because I was taking a blood thinner. He was well aware of this but never told me to stop taking it days before the procedure, as they should have. He apologized and took full responsibility.

There is more to this story that I will share later but right now, that’s about all I can write without getting completely frustrated all over again. The good news is I believe I will be going back next Monday to try again.

I will keep you posted!


Moved In and More

So we finally moved into our house yesterday! I’m so thankful for my family and all of the help they offered with the entire ordeal. Everything went great and as of right now, everything is really coming along, getting unpacked and it already looks like home! It’s a good feeling but we definitely miss my Mom and and the old house. We are so pleased despite the mixed feelings. It’s not like she’s going away; at least we hope not! 🙂

Without any real time to take a breath, tomorrow Melissa is going to accompany me while I do a baclofen trial for my ever bothersome spasms. We have to be at the hospital around 6:30 AM, meaning we will probably get started around 4:00 AM, if not earlier. Fortunately this is not an overnight stay, at least it’s not supposed to be. I will be admitted, giving local anesthetic, followed by an epidural to administer the drug to see how my body reacts and if I am a candidate. I forgot to mention, prior to any of the actual testing, a physical therapist will evaluate me and my spasticity prior to receiving the baclofen. Then, he or she will check in with me every so often throughout the day to see how things are going. They said this generally takes 10 hours, give or take I would imagine. We shall see!

Both of these things are very exciting times in my life! The trial could potentially be life changing, just because how bad my spasms have gotten and how they have altered my life, and obviously purchasing and moving into your first home with your family goes without saying!

I hope you all are well and I will check back with you soon!


Blogs!

Please check out my wife’s new blog! She has done a great job so far and I love reading it, especially called the great stuff about me! 🙂 Here is the address- www.sciaaronmelissa.blogspot.com . We have also had the privilege of getting to know another couple dealing with life and an SCI. Here is Dana and Mike’s web site – http://www.lovelikethislife.com/ . You don’t have to be living or dealing with an SCI to just appreciate the stories, information and sometimes life lessons you can that are offered. They are definitely worth a read! Feel free to pass along information!


Downton Abbey

If anyone out there is looking for a new TV show to start watching, I highly recommend this. I would never in 100 years would have guessed I would enjoy this as much as I am. This is coming from a from a man who loves Sons of Anarchy and The Walking Dead. I just heard so many great things about it and I’m really happy we finally caved in and started watching. I would be curious to hear what other people think.

That’s all for now! Just a random thought.


Counting Down

Our house is finally coming together, although we have not yet moved. Our days living with my mother are limited, and that makes me sad in certain ways, but also is very exciting because of the new chapter in our lives that we are starting. After all, I am almost 31 years old, married, with a stepson and living at home with my mother. Who would have guessed? I never imagined this is where I would be in my life at this stage but then again, it’s almost getting to the point where this seems somewhat normal, if that’s at all possible. August will mark four years since my injury and everything I knew before hand has either changed significantly or is no longer part of my routine. Some days are easier than others. Some days bring more joy than others. Some days I really struggle to be anything than miserable and I hate it. It’s not fair to anyone. Not myself but more importantly, not to those that love me and sacrifice so many things on a daily basis just for my benefit. That’s why I’m hoping this new chapter of ours will allow me to get a new start, if for nothing, only for my own mental health! Besides, my wife and stepson deserve my absolute best. Not that the time that has passed with them was horrible on my end, at least I hope not, but I could have definitely done better. I guess everyone can always do better, but I’m really looking forward to this fresh start. So anyway, sorry for this long and rambling post, but I wanted to say hello and give you a small idea of what’s going on. I really appreciate any of you out there who still follow these little blurbs about what’s going on in my life. It means so much. I know I keep saying that I’m going to write more often, but this time I mean it! I promise! I hope that all of you out there are well. Talk soon!


We finally settled!

As of Friday, January 11, Melissa, Brock and I are proud homeowners! We are very excited with all of the potential that this home has to offer. It is in fine condition and ready for us to move in however, we are looking into some home modifications so we are unsure the exact date we would actually make the move. Thankfully my mom is in no rush to get rid of us, at least it doesn’t seem so anyway! 🙂 I would love to post some pictures of the house but I need to figure out how to do that. As easily as I move around with computers and now a decent amount, I just cannot figure that part out! I will work on it. Either way, we will be taking before and after pictures so at some point hopefully we will be sharing those with everyone.

I know it’s been a while since I’ve touched base so I hope that everyone had a very nice holiday season. I also hope most of you are avoiding the flu although that seems practically impossible.

Thanks for following! We will touch base soon.

Aaron


New Family Member!

Our family grew early December 3 with my cousins welcoming their beautiful baby girl, Elle! She is absolutely beautiful in the only bad part about the whole thing is that they live in Las Vegas. Danielle, my cousin’s wife but as far as I’m concerned my cousin as well, started going into labor just before her mother was able to arrive from Pennsylvania, which they had planned. She was able to reschedule her flight and arrived just in time, along with one of Danielle’s sisters, which was a surprise to her. Bill, my cousin, will be having his mother visit very soon! I know that she is very excited and she just celebrated her birthday on the 6th, so what a great birthday present that was!

Danielle and the baby (And Bill!) are thankfully home safely, healthy and happy but if you could pray for them, I’m sure they would be very appreciative! It definitely will not hurt!

Thanks a lot and congratulations to them again! I cannot wait to meet her!


Happy Thanksgiving!

Hello everyone! I hope that everyone has a wonderful day with their families eating lots of food, laughing and making memories. Hopefully everyone remembers the name of the day and thinks about everything in their life to be thankful for. I know I will. Three years ago I was still in a rehabilitation hospital, on a ventilator, had a trach, countless other issues and on top of that, in pain and so heavily medicated that I completely missed the holiday. People came to visit me which I did not remember the next day. Thank God for the progress that he has allowed me to make since then. I’m thankful for so many things that I cannot begin to even express my gratitude. I would be no one and who knows where I would be without my family, their love and support, constant giving and complete selflessness. They, along with God, have allowed me to become a person I am today. Although it’s not the same person as four years ago, that no longer matters. From this point we go forward, grow as the new person I am and be thankful for the opportunities I have been given.

Have a wonderful Thanksgiving! Did not take your days for granted.


Sandy

Hello everyone. I know that so many were affected by the storm in one way or another. Maybe if it wasn’t you, it was someone you know. To think, the devastation shown on television does not even begin to show the true loss everyone up and down the eastern seaboard has suffered.

Fortunately our family was not affected. I live very close to a creek which overflowed this time last year with all of the flooding, missing us by just one street. People all over Central Pennsylvania are still trying to get to their feet from that time and fortunately, for the most part, it seems like we missed a bullet. Thank God for that.

Our country always bounces back but this will obviously take some time. Don’t forget that you can make donations at the Red Cross web site.

Hoping all of you out there were as lucky as we were.


New on the HOME Front

There are so many things I need to share with everyone but I think I will gradually do so over the next few days.

One very exciting thing is that Melissa and I submitted an offer on a house! We like it for a bunch of different reasons. It’s obviously livable now and there are a lot of things we like about it but, it has so much potential! One of the most important things is that the neighborhood appears to have a lot of kids Brock’s age. This is a huge plus!

Anyway, we don’t know for sure what’s going on yet but we will definitely keep everyone posted.


Return to Kennedy Krieger!

I will be returning to Kennedy Krieger early 2013! We are very excited and I look forward to sharing my experience with every one by the usual videos and blog updates. Yes, I will be doing better at keeping in touch this way!


Awesome Donation!

My stepsister, Alexis, has a lovely mother in law who is a teacher at the Manheim Township Middle School. Jackie and her colleagues held a jeans day fundraiser which raised $295 for my fund. I truly can not let them know how appreciative I am for this gesture. It will definitely go to good use!

Thank you again!


Hitched!

This post is beyond due. I have no idea where my mind was to have not done this earlier but, better late than never!

June 24, 2012 I was lucky enough to marry my best friend, Melissa. We have now been married a little over three months and together as a couple for one year! Some people may think this is crazy and that we might have rushed things, but it felt just fine to us! Not only did I gain a beautiful wife, I also happily inherited a 7 1/2 year old stepson! His name is Brock. He is a great kid who was raised by a great woman. Because we had a very small get together, I did not have the pleasure of meeting Melissa’s entire family, but those that have are amazing! They are very accepting of myself, my condition up and Melissa’s decision to spend your life with me. I have also become close with her parents who are also very sweet!

Like I said, we just did something very small and rather quickly. We hope to do something next summer to include more friends and family! More details to follow on that. If I can figure out how to post pictures on this web site, I will put several up from our special day!

Melissa has been so understanding, patient, loving, caring and nothing short of perfect! I know that we’re going to continue to grow stronger not just as a couple but a family as well! I cannot express enough how lucky and honored I feel to be married to her. If everything happens for a reason, this answers a lot of questions. I love you!


Basket bingo!

A huge thank you to everyone who attended Sunday’s basket bingo.  It was my first one but I would have to say it was quite a success!  I had fun anyway!  Probably because my fiancé won twice and freaked out like a kid on Christmas morning.  She special!  Speaking of special, I wanted to give a very special thank you to Tasha Cochran for setting things up.  Could not have done this without her.  Also wanted to thank my family which also helped a lot!  Cannot wait for the next one!  🙂


Basket Bingo Fundraiser! Sunday, March 25

St. Patrick’s Themed Basket Bingo, Sunday, March 25

A portion of the proceeds will benefit Aaron’s Journey

Chambers Hill Fire Company, 6400 Chambers Hill Rd. , Harrisburg, PA  17111

Doors open at 11 AM, Early Bird at 12:30 PM, Bingo at 1 PM

27 games for $25, 15 extra baskets being given away at no additional costs!

Bring a non-perishable food item for free raffle tickets.

Wear green for free raffle tickets.

RSVP to Diane Zimmerman at 717-512-4243 to reserve/purchase tickets.