Lots of neck pain, but lots of time off vent!


Aaron had a lot of neck pain today.  When that happens, of course, he gets more pain medicine which often makes him sleepy.  He was tired today, but he stayed awake for his therapy sessions, and that’s a good thing!   He went off the vent onto the trach collar at approximately 7:15 this morning and stayed on it for…………………(drumroll)……………11 1/2 hours !!!!   Great job, Aaron!   

We were told today that Aaron’s discharge from Magee will take place on November 6th.  Our plan (up until today) was for Aaron to go home to his Dad and Step-mom’s house upon discharge, BUT today we were thrown a curve; another option to consider, a facility that specializes in weaning patients from ventilators.  There are several close to home (Harrisburg, Lancaster, York) that we could consider if Aaron would choose to go that route.  He would be admitted as an inpatient and would still receive physical therapy, however, it would not be to the same degree  he gets now.  Their main focus would be getting Aaron off of the vent, which is Aaron’s primary goal right now.  This is a new option for Aaron to think about, as well as Jaime and the rest of his family.  Life and rehabbing would be easier for Aaron (and everybody involved with his care) if he could lose that apparatus!!!  So, stay tuned, we’ll keep you updated on Aaron’s next step in his journey!

One more thing.  Aaron and I were chatting this evening after he ate supper and we looked over at my husband, Sam, who (last time we looked) was watching TV, to find him sound asleep in Aaron’s bed.  I took a couple of pictures, because I knew when I eventually told Sam he’d been sleeping, he’d deny it, as he ALWAYS does.  I was correct, he did deny it.  I have the pictures to prove  it and I told Aaron I was going to post one on his blog, so here it is.  Just for you  Aaron.  And yes, he really was sound asleep…..doesn’t look too comfy.  Who looks like that when they sleep?   Is that normal????

And I continue to ask you to please pray for Aaron’s recovery.    Thank you everybody!!

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10 thoughts on “Lots of neck pain, but lots of time off vent!

  • Jabette Shearer

    Hi Aaron,
    Just checking in with you. I think of you often and wonder what I can do to help. You are in my prayer and I put you on our prayer chain at church. Lots of people behind you and lots that you have never met.

    It was so nice to meet your Mother the other day. I am trying to think of other ways that we could help you or your family.

    Please keep up the great work and I will chat with you later.

    Janettt\e

  • Fran Leonhard

    Hi Aaron!

    Great job 11 1/2 hours off the ventilator. I pray for you everyday. Now if you can keep Sam off your bed maybe you could get some rest…ha ha ha.

    Keep on keeping on!

    Fran

  • Eileen

    Way to go Aaron, you are doing an amazing job, keep it up. We are always thinking about you and praying for you.

  • Heidi & Brian Koppenhaver

    Hi Aaron,

    We’ve been following your journey these past few weeks and continue to pray for you and for your recovery, and for your entire family.

    Keep up your good attitude and all that spunk!! You are amazing!

    Love,
    Gina’s cousin Brian & Family

  • Sue

    Great job off the vent Aaron! Love you and can’t wait to spend time with you on Saturday!
    Diane, once again your comments made me laugh out loud!!

  • Louise Meiskey

    Member at Grace Church—Keep going—give them more than they expect. Don’t stop until you are satisfied and then continue giving all that you can. Hopefully we will be getting more updates at Church.

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