Thanksgiving!
It was so amazing to see so many come to support Aaron at the Brownstone yesterday. I say amazing not surprising because we have seen the same kind of generosity and compassion throughout Aaron’s journey. A big huge thank you to all the folks at the Brownstone who gave of themselves for Aaron’s benefit. Other things that quickly come to my mind that I am thankful for this year…
Everyone who has given of themselves for Aaron; encouraging words, prayer, financial support, sharing of time and talents.
To be part of a loving family.
That Jaime and Tory came into Aaron’s life and love him so much.
That God is faithful even when we are not.
The power of prayer.
We visited with Aaron today and now that he is off most of the pain meds that were making him so tired and weak, he is very alert and has his quick wit and smile back. He had lots of visitors today… Aunt Den, Uncle Charlie and Aunt Deb, Pappaw, Mammaw, Uncle Pete and Aunt Diane, John Panni, and his mom was on her way when we left. Don’t know about anyone else, but we had a bounce in our step when we left. It was sooooo good to have Aaron back to normal!
We are currently training on Aaron’s ventilator care in preparation for his discharge. We are hoping for a 12/7 discharge at the latest. Once he’s home he will be making his way to Kennedy Krieger for some aggressive physical therapies. We are all looking forward to that! Yes, Aaron will be coming home with a ventilator, but he will still be working to wean from it. We are finding that slow and steady is better than fast and furious as regards vent weaning. We all know he will be off the vent in the future, it just takes time to do it right.


So I haven’t written a blog in awhile, so I hope my blogs can compare to Greg and Diane’s…ha..but anyways, I had the opportunity of being in the Harrisburg area for the weekend! I just love the area from Elizabethtown to Middletown to Harrisburg. And thank you to everyone for your offers for me and Tory! We feel so loved!! When I arrived to the hospital Saturday afternoon, I exchanged Tory with Greg and Gina Wood since the hospital STILL won’t let little ones up there, even though my little bugger had her vaccinations, but ok we’re dealing with it….ANYWAYS, I walked up to see Aaron with Ann and Kelly Garrett! We had a fun little Saturday afternoon while Aaron got to visit with some loved ones he hadn’t seen in awhile. He was awake for the visit, and after Ann and Kelly left Aaron and I decided to have a little date night. We ordered some amazzzzzzzing food and tried to start a few movies. The movies were dull, so I helped Aaron in bed and we turned a little TNT on. Can never fail with that. So we wrapped up the night around nine and Aaron snoozed away while his trach was completely capped off. I heard he began the capping early in the AM, so a good day to say the least….I arrived Sunday after church to see Aaron visiting with his mother’s side of the fam (Pap, Diane, Deb, and Charlie). Aaron was again capped (since 10:30 AM!) and he was handling it great. We watched football (BOOOOOO STEEELERS) and ate a lot of snacks. Aaron had a decent day, but had a lot of neck pain. So anyone that visits, remind him to do his neck stretches ; ) . What else can I tell ya…um…yeah I thought he was doing excellent given his pneumonia #2 episode earlier in the week. But Aaron just fights on through..he’s a troooper!! : ) I left tonight to a beautiful sunset…I took a picture, but lost my patience when I try to post it to the website…so I will send that to Curt, so you can see the great view Aaron has at Speciality Select!



